Diagnoses and Living with Fibromyalgia

Just wanted to write some good news as to what I have been up too.
Been sick for many months so everything I have been doing is just taking care of myself. It is all you can do when you have a terminal disease.

After many tests then experimental natural medicine and Pharmacy drugs I hope to be on the road to normalcy. If you have never had a long-term illness normalcy is not a normal life. It's just the most normal I can hope for.

When I was diagnosed with fibromyalgia the doctor said: "I have good news and bad news which do you want first?"

"Give me the good news first."

"Well, Denise you have Fibromyalgia. Now you at least have a name for your illness."

"And the bad news is there is no cure so you will have it the rest of your life."

I was relieved to know it wasn't imaginary after Ten years of being told it was in my head. I learned how to live and work with it. Knowing I had to use time and energy wisely helped. The main problem was family and friends didn't understand what my body was going through. They would suggest exercise, special food diets, detox chemicals and metals out of my body. People just didn't understand I needed to sleep 14 hours a day. I couldn't go for walks anymore. I had to save the energy to bath, cook, clean house.

I was only 30  years old when I first had signs of the disease.
I continued to work and raise kids until I turned 58 years old. As the years passed the disease progressively got worse.
After getting fired for being sick I went on disability. Its taken three years but I am having some luck with a better life than it had been. Working is a privilege when you have a terminal illness. So many take it for granted, I loved to work. But my body said, "You are done, no more."

Its ok now I do all the things I didn't have time or energy for. Writing, painting, reading, and family on the days the pain isn't taking me down. Just started taking Lyrica, it is expensive but the Fibromyalgia is getting worse as the years go by. I do have a good Doctor who is willing to make my life as normal as possible if being limited is any kind of normal. I smile and try to laugh when I can it helps to accept the miserable existence.

Have a great day I will try