Thank you Letter for my donating to AARDA from my eBay sales

Here is a letter that I was sent and am very proud to know I am making a difference for people with Autoimmune related diseases. Every little bit makes a difference.

September 11, 2017

Dear Donor, Artist Denise Fletcher 

On behalf of the Board of Directors of the American Autoimmune Related Diseases Association (AARDA) and myself personally, I am writing this letter of appreciation. We thank you for your financial support during this past year, whether through your online giving or your payroll campaign participation. 

Over the past year, we have been hard at work on behalf of the over 50 Million Americans living with autoimmune diseases. We could not have done any of it without your generosity. AARDA has;

• Redesigned our website www.aarda.org. We have now included a resource list for patients seeking financial help and other services.
• Focused on federal and state level advocacy issues surrounding patient-doctor-insurance communication, step therapy, non-medical switching, the AHCA, among other issues.
• Worked with others to have PDUFA (Prescription Drug User Free Act) pass both the house and senate (www.aarda.org/pdufa).
• Officially launched ARNet, the Autoimmune Research Network. This patient-powered database will connect patients and researchers in helping to better understand and create innovative treatments for autoimmune diseases.
• Continued our long-term programming including; funding the young investigators' research grant, providing patients with information and resources, holding two scientific colloquiums per year, and increasing public awareness about autoimmune diseases.

You are an important part of this AARDA mission that works to improve the lives of the 50 Million Americans and their families affected by autoimmune disease.  Your donor dollars have positioned AARDA to advocate for improved-therapies and additional research and have enabled us to support scientists of the future. Your dollars have been stretched even further through the valuable assistance of dedicated volunteers and contributed in-kind services. This has enabled us to hold our combined administrative and fundraising costs to only 8 percent of our revenues!

Again, thank you. Your kindness does not go unnoticed.  Your help does, indeed, make a difference.

With appreciation,

Virginia Ladd
President/Executive Director

Wean me off these drugs

Been a member of the Fibromyalgia English/Afrikaans quite some time and it helped me through some rough times. This past month I had enough of medication that just did not work. Told my doctor enough was enough, wean me off these drugs. It was tough. I survived the withdrawals. Less pain now, less stiffness, but thank goodness I am not being videotaped daily.

The mood swings from tears, anger, laughter, confusion, frustration and did develop high blood pressure now. I take aspirin and medical marijuana as needed, it does work. Not daily either. Just when the pain is intolerable. Now if I could just get the emotional fixed, but the pharmaceutical drugs has so many negative effects on me I would rather be known as the crazy lady who lives with 2 dogs, artist who paints pictures, and smokes pot.

My energy level skyrocketed from sleeping 14 hours a day and 10 hours of exhaustion to sleeping 6 hours a day and getting so much done that I had never dreamed possible again in my life. I was diagnosed 1996, symptoms started at least 10 years before. Saw many psychiatrists over that 10 years, no one knew what Fibro was. Had many family and friends giving me advice on exercise and diet. Even this past year had someone tell me I just needed to move more, did not respond to her skinny self (20+ years younger than me) with a husband and two sons to help her to do all the things I do not have help with. This is why I call Fibromyalgia the stupid disease, for the stupid things people say to us with the disease. They are not educated in the disease and chose not to understand the disease.

Poor me day LOL

She has been trying so hard and getting nowhere.
Tired can't even begin to describe her life.
Denise and her pets surviving the winter until her paintings and prints sell. She is working very hard to get the word out about her paintings.

Sincerely love and blessings,
Matilda and Teddy

Do you ever wonder what you were born for?

I have been wondering what my purpose is! I don't think it is ever going to come to me. The only thing I guess was to have my son's. Because having my daughter turned out disastrous for her and her children. Now my heart is broken beyond repair.
My life is lonely, sad and not fulfilling. Have not reached one of my goals.
I think I reached the best part of my life in my past.
So now I wait for the end to come.
It may be a year, or 20, just have to wait and see.
I worked hard, gave much, was always optimistic, now all I see is nothing special anymore.

One to many speed bumps

Chapter One

She sitting on a wooden chair in the bathroom of a shabby apartment. She had lost her house, she lost her job and now she is thinking is this all there is to life. She looks up at the cracked plaster walls with water stains running down the walls from years of steaming baths that had taken place over the years. Wonders how many other lost soul have been there in her state.

The table wobbles so she places a book of matches under one leg to stabilize it, the table sits under the window with a water-stained window shade, and it has yellowed from age. The edges are torn. The bathtub claws hadn't been painted in some time, now it’s peeling away from neglect. Denise feels just like the bathtub claws, from years of neglect.   She looks at the colorful pills she had poured onto the table and started to sort them into piles by color. She thinks what a contrast from the beautiful colors of the pills to the state of her mind and the dreary room she sits in.  Is this all there is, is this the only solution.

Chapter Two

The car comes to a stop behind the house and Brad wakes her up to tell her she is home. He tells her goodbye, then his sister and he laugh. Denise gets out of the car and watches as they leave, she goes into the house. The hell hole. She is 7 months pregnant and 15 years old, still lives at home. Her mother wanted her to have an abortion but, Denise wouldn't have anything to do with that. She loved Brad and they were going to raise the baby. She had been working by taking care of 3 children and cleaning their house 50 hours a week. She had bought a baby crib, high chair and redone them to look like new. She had bought baby clothes, bottles, diapers, she was going to name her Christine Marie if a girl and Bradley Jay if it was a boy.

She didn't know that the day Brad dropped her off at home was going to be the last day she was going to see or hear from him again. He never even kissed her goodbye. The only thing she remembers from that day was the laughter coming from the car as they drove away.

In September she started homeschooling, because of her condition, this was in 1971 pregnant girls did go to public school and her family was too poor to send her away to one of those boarding schools.

By now she realizes that Brad was never going to be there for her and the baby, so she decided to give the baby up for adoption, so the baby would have a better life than she could give it. Denise did not want the baby to grow up in the hell hole she was living in.

When she was 14 years old her father made her leave home, because her mother had made her older sister leave, her sister was 18 and had graduated from high school. But Darlene would not work or go to college so their mother said she had to leave. Denise's father said, "If she has to go, so do you." Denise cried and begged her mother not to make her go. She was going to school and babysitting, she was a good girl. She was only 14. 

Chapter Three

Denise ended up at her brother’s one-bedroom trailer in a trailer park in Farmington Hills Michigan. He was married to Patty, they did not have any children. She got a job right away babysitting another couple’s child in the park. That was for the summer, then they moved to a house in Redford Township Michigan in September. Denise started school and she had chores to do around the house for her keep. Her bedroom, kitchen, living room, and bathroom. She had to have those rooms cleaned and homework done before she could go out with her friends and be home by 6 pm. she got out of school at 3:30. It was a sad time for her, she felt like a prisoner. Then one night her brother-in-law Sherman showed up at the house drunk, he tried to rape her. She screamed and her brother threw Sherman out of the house. The next day her sister-in-law and her went shopping for supplies, paint for the wooden floor and burlap to staple to the rafters, to fix up the attic space so she would feel safe. She wanted to go home so bad, but her parents wouldn't let her. This went on for a few more months until she just couldn't take any more of the abuse from her sister-in-law. She called her mother and begged her to let her come home. Finally, her father said she could come back. By now they were living in Howell Michigan and her sister Darlene was already back living there too.

Denise had met Brad two years before while they lived in Onaway Michigan, Brad was now living in Jackson Michigan, not too far from Howell. Denise's father was still being verbally abusive to her, they got into a fight one day and she ran away to Jackson to find Brad.

Denise hitchhiked down there, but on the way three guys pick her up and threaten to rape her, she fought them off until she jumped from the car, she ran to a payphone to call Brad to come get her. She was terrified of what could have happened to her by those three men.